Terry and Tamara

TwinsCoast2Coast, Terry and Tamara

How would you explain MS to a child?

Tamara and Terry looked our girls in their eyes and thought how am I going to tell these innocent young girls we have a chronic illness that will not go away and will be a part of all of our lives forever. 

MS is the short name for multiple sclerosis which is a neurological disease that affects the brain, spinal cord, and optic nerve. 

Think of it as an electrical cord that has the outer black lining damaged to see its color wires exposed.

Let’s get our coloring crayons out and draw a line that doesn’t connect together. The myelin that surrounds the nerve gets damaged and cannot help the muscles to move so sometimes you become weak. 

What would you want the world to know about Multiple Sclerosis?

MS is a life sentence but not a death sentence.

How does it feel to live with MS?

Tamara and Terry feel like we're rag dolls. Our legs flop around with spasticity and do not move, although we have found Joy, love and comfort to the people we have met through social media, doctors offices, and of course our family.

What brings us joy?:

Our number one thing that brings a story is our family. Through the years there have been lots of tears, hugs, but most importantly love.

Another thing that brings us joy is to tell our story to others. It brings happiness to both Tamara and Terry that we could put a sparkle of happiness into someone’s day.

Hey, because we are identical, twins, spending as much time together in person is the best joy we feel. To give each other hugs and comfort is the best feeling in the world.