Julie Stamm

Julie Stamm, 43, Immunocompromised/Progressive Multiple Sclerosis

How would you explain Immunocompromised/Progressive Multiple Sclerosis to a child?

I take special medicine to help me stay strong and able to be the best mother I can be to my son. After I receive this treatment, it makes it harder for my body to fight off germs and I am more likely to get sick. What I do to help with this is: wash my hands a lot, wear a mask if I will be in a large group, and try not to touch my eyes, nose or mouth too much. 

What would you want the world to know about Immunocompromised/Progressive Multiple Sclerosis?

I would want the world to know that you can’t always see what someone might be struggling with. It is important to see everyone with an empathetic eye. Be kind.

What does it feel like to live with Immunocompromised/Progressive Multiple Sclerosis? 

I have been immunocompromised with progressive multiple sclerosis for over 16 years. While I still worry that a new symptom might appear, I find a lot of comfort in knowing that I am doing all I can to stay strong and stable. I also have high hopes for a cure within my lifetime. Advocating and raising awareness will hopefully turn this hope into a reality.

What brings you joy?

So much in this world brings me joy. I love pizza, pasta, friends, family, the list is endless… My all time greatest joy comes from being a mother to Jack and a wife to Adam. Everything is for them. Try to find joy in the little and big things. Joy is contagious. Spread joy.